Philly trip

Sunday am we headed out to Philly

we could not get into the RMH but went to visit friends :)

Gerri and Alexandra (2 beautiful Ukies with AMC)

Victoria was very proud of her tower!

Ms Collee was so wonderful to teach Gerri how to finger knit :)

we headed downstairs to play and let the kids run!

so much fun!

so fast, just a blur!

 We left the house and headed to a hotel for the night. we had dinner and watched the superbowl :)

time for the anthem!

;)

we got a free dessert and it was yummy! and chocolatey :)

bedtime! :)

We spent most of the day on Monday at shriners. We picked up Gerri's new AFO's and then had to wait to see Dr vB to mark them and measure Gerri's ROM. He was very busy and we had to wait quite a bit. the worst part was that the advil I gave her totally wore off by the time he came in and she was already stressing him touching her and measuring her. He was his usual happy self, stretching her, talking to me while she writhed and screamed and cried. He was not happy with her not walking or stretching or moving around, which was not a surprise at all. He showed me how to do some stretches and wrote up a new script for PT. He wants to focus on her hip first and her knee second. He thinks the hip rom will be more useful and needs to be maintained. Her left foot/lower leg is still a bit swollen and very turned out. He said it would be a week or so before the left foot starts to come back round.
Gerri has been released to go back to school full time and is now using the walker to make her be mobile.
She has been back for 2 days and is so tired when she gets home. We have started stretching and exercises to try to get back the muscle she has lost in the past 3 weeks.
so hard to believe she can lose so much so quickly, but she has :(
tonight I was able to get her to walk independently across the room. she has no confidence in her walking or her balance.
And we go back in one month for him to see how she is progressing!